Thursday, April 7, 2011

Different Wavelengths

Ever notice how the people that should have a basic understanding of the limitations autism can place on a child's ability to navigate the outside world often do not? 

I'm not talking about the "model parents" rolling their eyes and shaking their heads when your child is having a meltdown a the supermarket, or even the 70 year old cashier who sneers "Doesn't he talk?" after her aggressive attempts at getting a response to grandmotherly questions is ignored. I'm talking about the surprising number of people in the medical and nursing field that seem to at best have a limited understanding of what to expect from the patient with autism.

It usually starts with the person asking him a question that is beyond his ability to understand and respond to. I then typically answer the question for Owen. When the expectations continue to go beyond what can reasonably be expected and I see his stress level rising, I tell them he has autism. More often than not, I'm reminding them he has autism (he's a frequent flyer, and it's in the chart!) Yet after explaining it, the problems tends to persist. I've recently taken to providing a short explanation of the difficulties associated with autism with improved results at subsequent visits.


My explanation usually goes like this: He has autism and has difficulty understanding and responding to complex sentences or instructions. He prefers to have less direct interaction with strangers until he gets used to them.

I know this is one of those things I have to just accept as coming with the territory and hope my explanations lessen the issue over time, but man is it irritating.